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New blog post:
Living with Chronic Fatigue Syndrome (CFS)
http://82mhz.net/posts/2026/02/living-with-chronic-fatigue-syndrome-cfs/ -
undefined stefano@mastodon.bsd.cafe shared this topic
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@82mhz your post is fantastic. While it might sound unbelievable to some, those who suffer from or live near someone who does will completely understand. Thank you for raising awareness about this.
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@82mhz
From all the reports on living with ME/CFS I have heard of so far, yours is most similar to my own history. Thanks for the level description and for relaying how you don't totally despair but rather have a life that is somehow still worth living. Heartfelt sympathies. -
@82mhz oh wow, that's wild 🫢
I'd only heard about CFS after the pandemic, but never really dug into it, thanks for sharing your lived experience.A bit lost for words somehow, but your account, and that Austrian girl's story, really make it obvious that there are way more things than one would think out there, where our current healthcare systems are at an absolute loss.
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@82mhz Thanks for writing this article. It helps to understand the whole thing and the state of research today.
And there will better days, out of this syndrome 🌻 -
@82mhz this was such a great read and I'm so glad you wrote it. It's tough to write things about our vulnerability and you've done it so well here. Also, your writing is gripping and interesting, I couldn't even stop reading it. Fascinating. And awful. It's good to remember for everyone-- as we're all going through our own stuff.
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@82mhz thank you for sharing! Your attitude of gratitude is inspiring.
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@82mhz your post is fantastic. While it might sound unbelievable to some, those who suffer from or live near someone who does will completely understand. Thank you for raising awareness about this.
@stefano
Thank you Stefano for reading and for the kind words! :)
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