Treatment with my local sleep medicine doctor has gone as it can, without any resolution.
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Treatment with my local sleep medicine doctor has gone as it can, without any resolution. I have the two severe types of sleep apnea that cannot be treated due to a type of sleep disturbance, and I'm ok with that. But my specific sleep disturbance, ISWRD (irregular sleep wake rhythm disorder), does not seem to be resolvable locally. As background, this is most frequently seen in the elderly population in nursing homes, and thus I'm an outlier.
Would anyone happen to know of a specialist or facility that might be known for addressing ISWRD? Anywhere is fine as long as I can do telehealth.
Boosts are greatly appreciated. Thanks all!
#AskFedi #IrregularSleepWakeRhythmDisorder #SleepDisturbances
In your profile you state that you've AuDHD, so according to bleeding edge research that kinda lines up with irregular sleep wake rhythm disorder though.
That paper stated that there are strong indicators that ADHD could be the symptom of a circadian rhythm disorder (but more research needed, so take it with a grain of salt).
However many of us with ADHD have irregular sleeping pattern. Most people I meat so far kinda just go with it though. What are the actual issues you face?
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In your profile you state that you've AuDHD, so according to bleeding edge research that kinda lines up with irregular sleep wake rhythm disorder though.
That paper stated that there are strong indicators that ADHD could be the symptom of a circadian rhythm disorder (but more research needed, so take it with a grain of salt).
However many of us with ADHD have irregular sleeping pattern. Most people I meat so far kinda just go with it though. What are the actual issues you face?
Also for me personally the ADHD medication helps with that too.
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In your profile you state that you've AuDHD, so according to bleeding edge research that kinda lines up with irregular sleep wake rhythm disorder though.
That paper stated that there are strong indicators that ADHD could be the symptom of a circadian rhythm disorder (but more research needed, so take it with a grain of salt).
However many of us with ADHD have irregular sleeping pattern. Most people I meat so far kinda just go with it though. What are the actual issues you face?
@agowa338 Hi and thanks for this information. Yes, I am an AuDHDer. I will look for that paper, as I didn't know there was a possible relationship.
The issues I have is that my to-sleep and to-wake times vary wildly from day to day. And when I do sleep, it is for 15-60 min and then I am up for hours, and then that might repeat a few times over the night (or maybe not). And sometimes I have daytime sleepiness requiring a mid-day short sleep.
I had to discontinue sleep apnea treatment because insurance compliance requires a minimum of 4 hours of sleep 70% of the time. I am lucky to get 2-3.5 hours.
It'd sure be nice to improve on this, thus my call out for a possible specialist person or facility.
Thanks for the prompt for info.
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Also for me personally the ADHD medication helps with that too.
@agowa338 Good to know! I started Ritalin for the first time this month. Haven't seen it affect my ISWRD just yet, but perhaps with time?
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@agowa338 Hi and thanks for this information. Yes, I am an AuDHDer. I will look for that paper, as I didn't know there was a possible relationship.
The issues I have is that my to-sleep and to-wake times vary wildly from day to day. And when I do sleep, it is for 15-60 min and then I am up for hours, and then that might repeat a few times over the night (or maybe not). And sometimes I have daytime sleepiness requiring a mid-day short sleep.
I had to discontinue sleep apnea treatment because insurance compliance requires a minimum of 4 hours of sleep 70% of the time. I am lucky to get 2-3.5 hours.
It'd sure be nice to improve on this, thus my call out for a possible specialist person or facility.
Thanks for the prompt for info.
Do you have a university account? The paper is still too new to be on sci-hub...
https://doi.org/10.1007/s42399-025-02243-1
(and other released within the last view weeks)
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@agowa338 Good to know! I started Ritalin for the first time this month. Haven't seen it affect my ISWRD just yet, but perhaps with time?
Well it takes time to find the right medication and dosage for you.
Methylphenidate (Ritalin/Medikinet/Concerta) is not the only ADHD medication. If it isn't the one for you (e.g. the highest dosage is not effective enough) they move you over to others like e.g. Lisdexamfetamine (Elvanse/Vyvanse/Livizux).
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Do you have a university account? The paper is still too new to be on sci-hub...
https://doi.org/10.1007/s42399-025-02243-1
(and other released within the last view weeks)
@agowa338 Thanks for sharing that snippet. Sorry, I don't have a university account.
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@agowa338 Thanks for sharing that snippet. Sorry, I don't have a university account.
An account from a library near you? Those sometimes also grant you access to such things. If in doubt just try what selection thingy offers you.
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Treatment with my local sleep medicine doctor has gone as it can, without any resolution. I have the two severe types of sleep apnea that cannot be treated due to a type of sleep disturbance, and I'm ok with that. But my specific sleep disturbance, ISWRD (irregular sleep wake rhythm disorder), does not seem to be resolvable locally. As background, this is most frequently seen in the elderly population in nursing homes, and thus I'm an outlier.
Would anyone happen to know of a specialist or facility that might be known for addressing ISWRD? Anywhere is fine as long as I can do telehealth.
Boosts are greatly appreciated. Thanks all!
#AskFedi #IrregularSleepWakeRhythmDisorder #SleepDisturbances
@AncTreat5358
I don't remember her first name but Dr Cook at Optum Healthcare in Arlington, Washington, has dealt with a number of cases like this. I had multiple tele-health visits with her post-COVID, but my first visits were face-to-face and pre-COVID.She worked very closely with a couple of the local sleep centers to best map out patterns and treatments.
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@AncTreat5358
I don't remember her first name but Dr Cook at Optum Healthcare in Arlington, Washington, has dealt with a number of cases like this. I had multiple tele-health visits with her post-COVID, but my first visits were face-to-face and pre-COVID.She worked very closely with a couple of the local sleep centers to best map out patterns and treatments.
@nikatjef Thanks James! I’ll try to find her.
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